Issue: 10.03 | March 18, 2009 | by:
Nathan Weissler
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My Experience With Asperger's Syndrome At age four, I was
diagnosed with Asperger Syndrome, and have been in Special Education since age
three. Asperger Syndrome (AS) is a neurological disorder that is on the
autism spectrum. Common traits of AS include: difficulty with social
skills--such as knowing the correct social thing to do, or say. Other traits
include difficulty with physical skills, such as making a bed. or shoe-tying.
People with AS also have intense special interests, on which they focus, almost
exclusively, at times. My interests have consisted of Judaism, American History, Writing, Social Action, and most recently, Disability
Awareness. It has also been
difficult for me, at times, to function within the Jewish Community. Ironically,
while my special interests, at one point, kept me out, they have, more recently,
brought me back in. When I was in Religious School, at my synagogue, as a young
child, I was uninterested in the lessons, because I was not taught in a way I
could appreciate, and understand. More importantly, I was simply uninterested,
because the curriculum did not fit in with my then- interests, which consisted
of various movies, such as Aristocats, the Sound of Music, and Toy Story.
However, during my last year of religious school, my teacher, and her then
teen-aged daughter, went to great efforts to ensure that I was comfortable in
class, and I very much appreciated their efforts. Unfortunately,
however, my parents decided it just wasn’t working, and I began receiving Jewish education from a private
tutor. Gradually, my tutor
was able to use my interests to get me interested in Judaism. As an incentive to
stay on task, she set up a system of “Nathan Dollars,” which were fake money I
was “paid” with, for staying on task. For every “Nathan Dollar” I earned, I
could spend one minute discussing a favorite topic. While this worked for me,
one should be careful as to how they apply these reward systems--as I could well
see a child with AS feeling demeaned, and infantilized. Moreover, we need to
remember here that just as two non-AS individuals are not exactly alike, the same applies to AS
individuals. As I began to prepare
for my Bar-Mitzvah, I realized that I wanted to merge my interests with my
Bar-Mitzvah studies. An opportunity presented itself when I learned that my
Bar-Mitzvah Parasha was Ha’azinu, which consists of Moses’ last speech. Given
that Robert Kennedy, whom I was passionately interested in at the time, also
died after giving his last speech, I decided to give a Dvar Torah comparing, and
contrasting, Moses, and Robert Kennedy’s, last speeches. The Dvar Torah was very
well received, and I was delighted when it was published as a Community Voices
article in the Washington Jewish Week in June 2006. Since then, I have continued
using my strengths to write.
I have since published Letters to the Editor, and various articles in both the Jewish, and mainstream
media. After a few years of
writing, and studying, Judaism, I felt something was missing. As my interest in
Judaism deepened, I wanted to attend a Jewish day school that could provide me
with the support I needed. At first, that proved quite a challenge. However, my
parents found a special education program, at a local Jewish Day School, with a
very good reputation, which I visited, and loved. As of this past fall, I am attending that
program. I very much enjoy
attending this program, and have had many positive experiences there. This past
November, I was the speaker at an annual freshman sensitivity training workshop.
I got a lot of positive feedback, from my peers, about my presentation. The
Jewish community does a commendable job of including those with disabilities. If
every child, regardless of whether
they have Special Needs, had the nurturing teachers, and peers, that I have, society would be greatly
improved. The Tanach teaches,
“You shall not curse the deaf, nor put a stumbling block before the blind….” In
contemporary society, this should be interpreted
to mean that we exceed the biblical instruction--and support all members of their community, regardless of their
differences. |
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Nathan is a 16-year-old who has lived with Asperger's since being diagnosed at age 4. With his families help, and encouragement, and lots of personal courage, he has met his challenges with great success. |
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